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Supporting and empowering families facing Syngap1

Welcome to the French-speaking Syngap1 community. Together, we share information, support families and raise awareness to improve the lives of children and adults living with Syngap1​

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Syngap 1

Syngap1 syndrome is a rare genetic disease that affects brain development and function. It often leads to intellectual disability, epilepsy, autism spectrum traits and other neurological challenges.​

Around 1,700 cases are currently identified worldwide, but many people are still undiagnosed. Our association supports families, promotes research and helps professionals better understand this complex condition.

Support Syngap1 France

Your generosity changes lives. Every donation helps us support families, fund research and raise awareness about Syngap1.​

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